Medicaid Reference Desk

Project Dates:  9/30/2007 - 9/29/2013
 

The National Center for Self-Determination and 21 st Century Leadership at the RRI of Portland State University is a partner with The Arc of the United States, Self Advocates Becoming Empowered (SABE), and TheArcLink Incorporated in the continuing design and implementation of an interactive website to provide people with developmental disabilities, their families The National Center for Self-Determination and 21 st Century Leadership at the RRI of Portland State University is a partner with The Arc of the United States, Self Advocates Becoming Empowered (SABE), and TheArcLink Incorporated in the continuing design and implementation of an interactive website to provide people with developmental disabilities, their families and others with timely, accurate information concerning Medicaid services in their own state and nationally.

Information on all the Medicaid programs and services for people with developmental disabilities in every state and territory of the U.S. is being included on the website ( www.thedesk.info ). In each state, the Medicaid programs and services that support people with developmental disabilities and their families are carefully researched. Straightforward translations of Medicaid terms and service definitions are recorded by self advocacy leaders in more than 1,500 video and audio clips, so that people with disabilities can use the site and get an explanation of Medicaid even if they are unable to read and do not have screen reader software on their computers. Additonal enhancements include:

  • Clearly stated, state-specific, printable resource sheets, updated as changes occur in a state's Medicaid program, describe all the Medicaid services for people with developmental disabilities at a glance.
  • A cognitively accessible, person-centered planning module will allow a person with a developmental disability and/or family member to produce a "wish list" for their service coordinator of the services in their state that they want in order to become more independent.
  • Printable brochures and outreach materials will be online that users can download in order to inform people with developmental disabilities and their family members, service brokers, service providers and policy makers about the resources that are available through this project.
  • An ongoing, expanding collection of stories will communicate in everyday language the constructive experiences of people with developmental disabilities benefiting from Medicaid funding to create options and choices in their lives.